• Patients and families

• Health professionals

• Contacts

• Links

Information for children, teenagers and families

• Home
• About CF
• The clinical team
• Out-patient care
• Nutrition
• Food diary
• Physiotherapy
• Exercise
• Psychological support
• Schools
• Benefits
• Hot weather
• Travelling and holidays
• Chest infections
• Cough swabs and sputum samples
• Bugs
• Cross infection
• Problems that might happen
• Medicines (including inhaled drugs)
• In-patient care
• Lung function
• Bronchoscopy
• Chest xrays and CT scans
• Bone density (DEXA) scans
• Annual review
• Puberty
• Fertility
• Life expectancy
• Genetic counselling
• What is a genotype?
• Research
• Moving to adult care
• Annual survey
• Lung function at home

Research

Cystic fibrosis is an area of active research - both to work out to use existing treatments as effectively as possible, and to develop novel therapies. Children attending the OCCFN are currently enrolled in trials on use of regular flucloxacillin in the first 3 years (CF Start), and early use of ivacaftor in infants with the G551D gene mutation (the ARRIVAL study). For more information about these trials click the links:

• CF-Start
• ARRIVAL study

Previous studies in which children from the OCCFN have taken part include TORPEDO-CF (eradication of Pseudomonas), use on inhaled mannitol in 12-17 year olds, and gene therapy trials.

Research news

Gene therapy Orkambi and Symkevi
Triple therapy