'Getting Nosey about CF with Oli and Nush' is a cartoon aimed at children with cystic fibrosis aged four to eight, to help answer some of the questions they may have about cystic fibrosis. The cartoon can also be used as an educational resource in schools and hospitals.
This is a link to the CF Trust website page on information for schools. At the bottom of the page on the CF Trust site is a link to a pdf document "School and cystic fibrosis. A guide for teachers and parents"
The Cystic Fibrosis Trust have, for many years, produced guidelines on the standards of care for cystic fibrosis and on management of specific problems. Some of these documents are now out of date - the CF Trust is going through the process of looking at all of them and re-newing them where necessary.
NHS England - this website gives information about how specialist services like CF are funded. This link goes directly to the CF Clinical Reference Group (CRG) which advises commissioners about the services children with CF require. Scroll down through this page to find the National Service Specification which describes what services children should recieve and to find the policy on provision of high-cost nebulised drugs.
The Brompton hospital in London is the largest children's CF centre in the UK. The team there produce up-to-date detailed guidelines for the management children with CF. What we do is very similar to the Brompton.
Clinical guidelines covering a wide range of CF problems written by the CF teams working in the Peninsula CF network - with acknowledgements for the use of guidelines produced by The CF Trust, Manchester, Papworth,
Leeds and Brompton CF teams.
Standards of Care and Good Clinical Practice for the Physiotherapy Management of Cystic Fibrosis. Second edition. June 2011. (PDF 559KB)
EuroCareCF: Consensus guidelines and reports (European Coordination Action for Research in Cystic Fibrosis)
American Thoracic Society, Cystic Fibrosis Pulmonary Guidelines: Chronic Medications for Maintenance of Lung Health
'Getting Nosey about CF with Oli and Nush' is a cartoon aimed at children with cystic fibrosis aged four to eight, to help answer some of the questions they may have about cystic fibrosis. The cartoon can also be used as an educational resource in schools and hospitals.
This is a link to the CF Trust website page on information for schools. At the bottom of the page on the CF Trust site is a link to a pdf document "School and cystic fibrosis. A guide for teachers and parents"
NHS England - this website gives information about how specialist services like CF are funded. This link goes directly to the CF Clinical Reference Group (CRG) which advises commissioners about the services children with CF require. Scroll down through this page to find the National Service Specification which describes what services children should recieve and to find the policy on provision of high-cost nebulised drugs.
EuroCareCF: Consensus guidelines and reports (European Coordination Action for Research in Cystic Fibrosis)
American Thoracic Society, Cystic Fibrosis Pulmonary Guidelines: Chronic Medications for Maintenance of Lung Health