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Key Standards of Care

All children are seen every 2 months for routine visits and more frequently if required.

Patients and their families should be encouraged to participate in the planning of their care.

At routine visits, children are seen by their doctor, a CF nurse, CF physiotherpist and have access to a CF dietician and CF psychologist if needed. At each routine visit airway samples will be collected for microbiology, lung function tests will be performed (if the child is old enough to do them), and treatment changes made if necessary.

Children with chest exacerbations not responding to oral antibiotics are given intravenous antibiotics, either in hospital or at home with the support of a home iv service.

Children with CF are segregated from each other to prevent cross-infection in the outpatient and inpatient setting.

Children having treatment in hospital are seen regularly by the CF team and cared for by ward staff familiar with CF.

The members of the CF team are experts in CF and are up-to-date in knowledge and skills.